Okay my title doesn’t make sense.  There’s no such thing as planning the future when you have a child with special needs.  The future is 2 minutes away.  Sometimes the future is 37 seconds away.  I would venture to guess that any parent of a child with special needs might have a slight panic attack when thinking about the future with their kiddos.  I know I do.  So many people have asked me what we’ll do for Emma’s school after her 2 years are up at her current school.  And of course I’ve asked myself the same question.  It’s a hard answer.  I actually can’t answer, so I don’t.

Last week we took Emma to see a peds dermatologist at PCH to take a peek at a mole she’s had since birth.  He gave us good news in that it didn’t need to be removed.  We were thankful, because removing this mole meant general anesthesia for her.  And that’s always tricky with her.  Anyway, he gave us changes to monitor, should they occur.  And then he was very direct and said that we’d be able to closely monitor the mole as she would be living with us indefinitely.

It’s a tough pill to swallow.

Our daughter will live with us indefinitely.  Chances for marriage are slim.  Chances for children are slimmer.  She may not carry a full time job.  Or go to college.  I’m of the philosophy “never say never”, but I’m also realistic.  I don’t need to jade myself into what may be.  Because truthfully I don’t know.  But like I said, I’m realistic.

We’ve thought about the future in that we know where we want to live.  We’d like to buy my parents house and give it a facelift.  There’s a great backyard.  It’s a nice size.  Big enough to build a little guest house back there.  That would be for Emma.  It’s what I think about.

Be Sociable, Share!

•