One Step Forward…
You know how the saying goes. This will be short and sweet, as I need to get to the hospital early today.
Emma’s taken a step or two backwards. Yesterday she needed a blood transfusion because her white blood count was low. After the transfusion finished, we noticed a few symptoms (of what, we don’t know) starting:
- Facial “droopiness” on her right side…reminded us of the stroke she had when she was 2.
- Unusual movement with her tongue, which I think is new seizure activity.
- A fever of 101.5 that was stubborn to break, but finally did.
- Uncomfortable and becoming angry. She hadn’t been like this yet.
We’re not sure what these symptoms point to. But because of her history, today they will do an EEG and MRI on her. The MRI is a biggie for a few reasons. It requires general anesthesia which is risky with her condition anyway. Then you factor into that the recovery. More than anything, we are checking for possible stroke (although they think it’s unlikely) and just to see how it compares to the MRI of ’09. The EEG will check for new seizure activity. Are we seeing a new kind of seizure? Seemed like that yesterday.
What I’m hoping: this is all just worry and she was super-tired from yesterday. We had quite a few visitors, and perhaps she didn’t get the rest she needed? Last night, after I left, she got a sandwich to fill her belly and a good dose of morphine and/or valium. Brett wasn’t sure on which one! Either way, it’s a cocktail for a good nights sleep! I’m headed in early so I don’t miss the visit with the ortho, anesthesia, or anyone else. I’ll keep you posted.
In the meantime, please continue to keep her in her thoughts! And pass this on to a prayer group or church if you have one. The more prayer warriors on Emma’s side, the better! She will get through this! It’s just not as quickly as we had hoped. Thanks to my faithful blog readers!












I’m definitely thinking of you guys and keeping Emma in our prayers. I know from reading that she’s a fighter, and hope the results today give you some answers.